| Companies sponsors |
Orion Pharma (ganaxolone) |
| Others |
Central Manchester Foundation Trust, Willink Unit, Genetic Medicine |
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Department of Health and Social Care |
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Manchester centre for genomic medicine |
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NHS England |
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Rare Disease Collaborative Network (RDCN) for CDKL5 Bristol Royal Hospital for Children |
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Welsh Government |
| Patient carer groups |
Brain and Spine Foundation |
| |
Brain Charity |
| |
CDKL5 UK |
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Epilepsy Action |
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Epilepsy Society |
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Findacure |
| |
Gene People |
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Genetic Alliance UK |
| |
Neurological Alliance |
| |
South Asian Health Foundation |
| |
Specialised Healthcare Alliance |
| |
Young Epilepsy |
| Professional groups |
Association of British Neurologists |
| |
Association of Genetic Nurses and Counsellors |
| |
British Association of Neurologists |
| |
British Geriatrics Society |
| |
British Neuropathological Society |
| |
British Paediatric Epilepsy Group |
| |
British Paediatric Neurology Association |
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British Society for Cell and Gene Therapy |
| |
British Society for Genetic Medicine |
| |
British Society for Human Genetics |
| |
Epilepsy Nurses Association |
| |
Epilepsy Society |
| |
Institute of Neurology |
| |
International League Against Epilepsy UK |
| |
Neonatal and Paediatric Pharmacists Group |
| |
Neuromodulation Society of UK and Ireland |
| |
Primary Care and Community Neurology Society |
| |
Primary Care Neurology Society |
| |
Royal College of General Practitioners |
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Royal College of Nursing |
| |
Royal College of Paediatrics & Child Health |
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Royal College of Pathologists |
| |
Royal College of Physicians |
| |
Royal Pharmaceutical Society |
| |
Royal Society of Medicine |
| |
UK Clinical Pharmacy Association |
| |
UK Genetic Testing Network |
| Associated public health groups |
Public Health Wales |
| |
UK Health Security Agency |
| Evidence review group |
PenTAG Health Technology Assessment |
| General commentators |
All Wales Therapeutics and Toxicology Centre |
| |
Allied Health Professionals Federation |
| |
Board of Community Health Councils in Wales |
| |
British National Formulary |
| |
Care Quality Commission |
| |
Cell and Gene Therapy Catapult |
| |
Department of Health, Social Services and Public Safety for Northern Ireland |
| |
Healthcare Improvement Scotland |
| |
Inherited Metabolic and Lysosomal Disease Service, Cardiff and Vale UHB |
| |
Medicines and Healthcare Products Regulatory Agency |
| |
National Association of Primary Care |
| |
National Pharmacy Association |
| |
National Services Division |
| |
Neurological Alliance of Scotland |
| |
NHS Alliance |
| |
NHS Confederation |
| |
Scottish Medicines Consortium |
| |
Wales Neurological Alliance |
| |
Welsh Health Specialised Services Committee |
| Relevant research groups |
Brain Research UK |
| |
British Neurological Research Trust |
| |
Cochrane Cystic Fibrosis & Genetic Disorders Group |
| |
Cochrane Epilepsy Group |
| |
Cochrane UK |
| |
Epilepsy Research UK |
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Genomics England |
| |
MRC Clinical Trials Unit |
| |
National Hospital for Neurology and Neurosurgery |
| |
National Institute for Health Research |